Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases. (Record no. 28581007)
[ view plain ]
| 000 -LEADER | |
|---|---|
| fixed length control field | 01284 a2200337 4500 |
| 005 - DATE AND TIME OF LATEST TRANSACTION | |
| control field | 20250517224357.0 |
| 008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION | |
| fixed length control field | 201904s 0 0 eng d |
| 022 ## - INTERNATIONAL STANDARD SERIAL NUMBER | |
| International Standard Serial Number | 1750-1172 |
| 024 7# - OTHER STANDARD IDENTIFIER | |
| Standard number or code | 10.1186/s13023-018-0851-1 |
| Source of number or code | doi |
| 040 ## - CATALOGING SOURCE | |
| Original cataloging agency | NLM |
| Language of cataloging | eng |
| Transcribing agency | NLM |
| 100 1# - MAIN ENTRY--PERSONAL NAME | |
| Personal name | Tingley, Kylie |
| 264 #0 - PRODUCTION, PUBLICATION, DISTRIBUTION, MANUFACTURE, AND COPYRIGHT NOTICE | |
| Date of production, publication, distribution, manufacture, or copyright notice | 20190415 |
| 245 00 - TITLE STATEMENT | |
| Title | Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases. |
| Medium | [electronic resource] |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. | |
| Name of publisher, distributor, etc. | Orphanet journal of rare diseases |
| Date of publication, distribution, etc. | 06 2018 |
| 300 ## - PHYSICAL DESCRIPTION | |
| Extent | 104 p. |
| Other physical details | digital |
| 500 ## - GENERAL NOTE | |
| General note | Publication Type: Journal Article; Research Support, Non-U.S. Gov't; Review |
| 650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name entry element | Focus Groups |
| 650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name entry element | Humans |
| 650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name entry element | Rare Diseases |
| 650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name entry element | Research Design |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Coyle, Doug |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Graham, Ian D |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Sikora, Lindsey |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Chakraborty, Pranesh |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Wilson, Kumanan |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Mitchell, John J |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Stockler-Ipsiroglu, Sylvia |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Potter, Beth K |
| 773 0# - HOST ITEM ENTRY | |
| Title | Orphanet journal of rare diseases |
| Related parts | vol. 13 |
| -- | no. 1 |
| -- | p. 104 |
| 856 40 - ELECTRONIC LOCATION AND ACCESS | |
| Uniform Resource Identifier | <a href="https://doi.org/10.1186/s13023-018-0851-1">https://doi.org/10.1186/s13023-018-0851-1</a> |
| Public note | Available from publisher's website |
No items available.