Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases.
Tingley, Kylie
Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases. [electronic resource] - Orphanet journal of rare diseases 06 2018 - 104 p. digital
Publication Type: Journal Article; Research Support, Non-U.S. Gov't; Review
1750-1172
10.1186/s13023-018-0851-1 doi
Focus Groups
Humans
Rare Diseases
Research Design
Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases. [electronic resource] - Orphanet journal of rare diseases 06 2018 - 104 p. digital
Publication Type: Journal Article; Research Support, Non-U.S. Gov't; Review
1750-1172
10.1186/s13023-018-0851-1 doi
Focus Groups
Humans
Rare Diseases
Research Design