000 01332 a2200349 4500
005 20250517223128.0
264 0 _c20190529
008 201905s 0 0 fre d
022 _a1958-5381
024 7 _a10.1051/medsci/201834s111
_2doi
040 _aNLM
_beng
_cNLM
100 1 _aAymé, Ségolène
245 0 0 _a[State of play of French data collections in the field of rare diseases].
_h[electronic resource]
260 _bMedecine sciences : M/S
_cMay 2018
300 _a22-25 p.
_bdigital
500 _aPublication Type: Journal Article
650 0 4 _aBiomedical Research
_xorganization & administration
650 0 4 _aData Collection
_xstandards
650 0 4 _aDatabases, Factual
_xstandards
650 0 4 _aDecision Making, Organizational
650 0 4 _aDelivery of Health Care
_xorganization & administration
650 0 4 _aEvidence-Based Practice
_xmethods
650 0 4 _aFrance
_xepidemiology
650 0 4 _aHumans
650 0 4 _aInformation Storage and Retrieval
_xstandards
650 0 4 _aInternationality
650 0 4 _aPractice Guidelines as Topic
650 0 4 _aRare Diseases
_xepidemiology
650 0 4 _aRegistries
_xclassification
773 0 _tMedecine sciences : M/S
_gvol. 34 Hors série n°1
_gp. 22-25
856 4 0 _uhttps://doi.org/10.1051/medsci/201834s111
_zAvailable from publisher's website
999 _c28539155
_d28539155