| 000 | 00991 a2200289 4500 | ||
|---|---|---|---|
| 005 | 20250516062332.0 | ||
| 264 | 0 | _c20120529 | |
| 008 | 201205s 0 0 eng d | ||
| 022 | _a1559-2030 | ||
| 024 | 7 |
_a10.1016/j.cct.2011.10.005 _2doi |
|
| 040 |
_aNLM _beng _cNLM |
||
| 100 | 1 | _aGrady, Christine | |
| 245 | 0 | 0 |
_aInformed consent and patient registry for the rare disease community: Editorial. _h[electronic resource] |
| 260 |
_bContemporary clinical trials _cJan 2012 |
||
| 300 |
_a3-4 p. _bdigital |
||
| 500 | _aPublication Type: Editorial | ||
| 650 | 0 | 4 | _aGuideline Adherence |
| 650 | 0 | 4 | _aHumans |
| 650 | 0 | 4 |
_aInformed Consent _xstandards |
| 650 | 0 | 4 | _aPatient Advocacy |
| 650 | 0 | 4 | _aRare Diseases |
| 650 | 0 | 4 |
_aRegistries _xstandards |
| 700 | 1 | _aRubinstein, Yaffa R | |
| 700 | 1 | _aGroft, Stephen C | |
| 773 | 0 |
_tContemporary clinical trials _gvol. 33 _gno. 1 _gp. 3-4 |
|
| 856 | 4 | 0 |
_uhttps://doi.org/10.1016/j.cct.2011.10.005 _zAvailable from publisher's website |
| 999 |
_c21267464 _d21267464 |
||