Cystinosis in adult and adolescent patients: Recommendations for the comprehensive care of cystinosis. [electronic resource]
Producer: 20170407Description: 304-21 p. digitalISSN:- 1989-2284
- Adolescent
- Adult
- Amino Acid Transport Systems, Neutral -- deficiency
- Comprehensive Health Care -- standards
- Corneal Diseases -- diagnosis
- Cysteamine -- therapeutic use
- Cystinosis -- complications
- Disease Management
- Early Diagnosis
- Endocrine System Diseases -- diagnosis
- Genetic Counseling
- Humans
- Interdisciplinary Communication
- Kidney Failure, Chronic -- etiology
- Kidney Transplantation
- Nervous System Diseases -- diagnosis
- Patient Education as Topic
- Quality of Life
- Self Care
- Transition to Adult Care -- standards
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Publication Type: Consensus Development Conference; Journal Article; Practice Guideline
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