TY - GEN AU - Cruz,Rosángel AU - Belter,Lisa AU - Wasnock,Mike AU - Nazarelli,Al AU - Jarecki,Jill TI - Evaluating Benefit-risk Decision-making in Spinal Muscular Atrophy: A First-ever Study to Assess Risk Tolerance in the SMA Patient Community SN - 1879-114X PY - 2020///0407 KW - Adolescent KW - Adult KW - Caregivers KW - statistics & numerical data KW - Child KW - Child, Preschool KW - Decision Making KW - Disease Progression KW - Female KW - Humans KW - Infant KW - Male KW - Middle Aged KW - Muscular Atrophy, Spinal KW - therapy KW - Parents KW - Quality of Life KW - Risk Assessment KW - Surveys and Questionnaires KW - Young Adult N1 - Publication Type: Journal Article; Research Support, Non-U.S. Gov't UR - https://doi.org/10.1016/j.clinthera.2019.03.012 ER -