Gaasterland, C M W <br/><br/>
The POWER-tool: Recommendations for involving patient representatives in choosing relevant outcome measures during rare disease clinical trial design.  [electronic resource] 

 -  Health policy (Amsterdam, Netherlands)  Dec 2018 
 - 1287-1294 p.  digital 
<br/><br/> Publication Type: Journal Article 
<br/><br/><label>ISSN: </label>1872-6054 
<br/><br/><label>Standard No.: </label>10.1016/j.healthpol.2018.09.011  doi 
<br/><br/><label>Subjects--Topical Terms: </label><br/>Caregivers<br/>Clinical Trials as Topic<br/>Decision Making<br/>Focus Groups<br/>Humans<br/>Outcome Assessment, Health Care<br/>Patient Participation--methods<br/>Rare Diseases<br/>Research Design