TY  - GEN
AU  - Aymé,Ségolène
TI  - [State of play of French data collections in the field of rare diseases]
SN  - 1958-5381
PY  - 2019///0529
KW  - Biomedical Research
KW  - organization & administration
KW  - Data Collection
KW  - standards
KW  - Databases, Factual
KW  - Decision Making, Organizational
KW  - Delivery of Health Care
KW  - Evidence-Based Practice
KW  - methods
KW  - France
KW  - epidemiology
KW  - Humans
KW  - Information Storage and Retrieval
KW  - Internationality
KW  - Practice Guidelines as Topic
KW  - Rare Diseases
KW  - Registries
KW  - classification
N1  - Publication Type: Journal Article
UR  - https://doi.org/10.1051/medsci/201834s111
ER  -