Aymé, Ségolène <br/><br/>
[State of play of French data collections in the field of rare diseases].  [electronic resource] 

 -  Medecine sciences : M/S  May 2018 
 - 22-25 p.  digital 
<br/><br/> Publication Type: Journal Article 
<br/><br/><label>ISSN: </label>1958-5381 
<br/><br/><label>Standard No.: </label>10.1051/medsci/201834s111  doi 
<br/><br/><label>Subjects--Topical Terms: </label><br/>Biomedical Research--organization & administration<br/>Data Collection--standards<br/>Databases, Factual--standards<br/>Decision Making, Organizational<br/>Delivery of Health Care--organization & administration<br/>Evidence-Based Practice--methods<br/>France--epidemiology<br/>Humans<br/>Information Storage and Retrieval--standards<br/>Internationality<br/>Practice Guidelines as Topic<br/>Rare Diseases--epidemiology<br/>Registries--classification