TY - GEN AU - Zolkipli-Cunningham,Zarazuela AU - Xiao,Rui AU - Stoddart,Amy AU - McCormick,Elizabeth M AU - Holberts,Amy AU - Burrill,Natalie AU - McCormack,Shana AU - Williams,Lauren AU - Wang,Xiaoyan AU - Thompson,John L P AU - Falk,Marni J TI - Mitochondrial disease patient motivations and barriers to participate in clinical trials SN - 1932-6203 PY - 2018///1211 KW - Adolescent KW - Adult KW - Aged KW - Attitude to Health KW - Child KW - Child, Preschool KW - Clinical Trials as Topic KW - economics KW - Cohort Studies KW - Developmental Disabilities KW - etiology KW - Epilepsy KW - Female KW - Health Expenditures KW - Humans KW - Infant KW - Informed Consent KW - Male KW - Middle Aged KW - Mitochondrial Diseases KW - drug therapy KW - Motivation KW - Muscle Weakness KW - Patient Acceptance of Health Care KW - psychology KW - Phlebotomy KW - Research Design KW - Severity of Illness Index KW - Surveys and Questionnaires KW - Symptom Assessment KW - Young Adult N1 - Publication Type: Comparative Study; Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't UR - https://doi.org/10.1371/journal.pone.0197513 ER -