Pelentsov, Lemuel J Development of the parental needs scale for rare diseases: a tool for measuring the supportive care needs of parents caring for a child with a rare disease. [electronic resource] - Journal of multidisciplinary healthcare 2016 - 425-33 p. digital Publication Type: Journal Article ISSN: 1178-2390 Standard No.: 10.2147/JMDH.S113898 doi