TY  - GEN
AU  - Cavero-Carbonell,Clara
AU  - Gras-Colomer,Elena
AU  - Guaita-Calatrava,Rosana
AU  - López-Briones,Carmen
AU  - Amorós,Rubén
AU  - Abaitua,Ignacio
AU  - Posada,Manuel
AU  - Zurriaga,Oscar
TI  - Consensus on the criteria needed for creating a rare-disease patient registry. A Delphi study
SN  - 1741-3850
PY  - 2018///0116
KW  - Consensus
KW  - Delphi Technique
KW  - Epidemiologic Methods
KW  - Humans
KW  - Interprofessional Relations
KW  - Rare Diseases
KW  - epidemiology
KW  - Registries
KW  - standards
KW  - Spain
KW  - Surveys and Questionnaires
N1  - Publication Type: Journal Article; Research Support, Non-U.S. Gov't
UR  - https://doi.org/10.1093/pubmed/fdv099
ER  -