Grady, Christine <br/><br/>
Informed consent and patient registry for the rare disease community: Editorial.  [electronic resource] 

 -  Contemporary clinical trials  Jan 2012 
 - 3-4 p.  digital 
<br/><br/> Publication Type: Editorial 
<br/><br/><label>ISSN: </label>1559-2030 
<br/><br/><label>Standard No.: </label>10.1016/j.cct.2011.10.005  doi 
<br/><br/><label>Subjects--Topical Terms: </label><br/>Guideline Adherence<br/>Humans<br/>Informed Consent--standards<br/>Patient Advocacy<br/>Rare Diseases<br/>Registries--standards