TY - GEN AU - Matsumoto,Hiroko AU - Clayton-Krasinski,Debora A AU - Klinge,Stephen A AU - Gomez,Jaime A AU - Booker,Whitney A AU - Hyman,Joshua E AU - Roye,David P AU - Vitale,Michael G TI - Development and initial validation of the assessment of caregiver experience with neuromuscular disease SN - 1539-2570 PY - 2011///0718 KW - Adolescent KW - Caregivers KW - psychology KW - Child KW - Child, Preschool KW - Female KW - Humans KW - Male KW - Neuromuscular Diseases KW - physiopathology KW - Orthopedic Procedures KW - methods KW - Parents KW - Prospective Studies KW - Quality of Life KW - Severity of Illness Index KW - Surveys and Questionnaires KW - Treatment Outcome N1 - Publication Type: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't; Validation Study UR - https://doi.org/10.1097/BPO.0b013e31820fc522 ER -