[State of play of French data collections in the field of rare diseases]. [electronic resource]
Producer: 20190529Description: 22-25 p. digitalISSN:- 1958-5381
- Biomedical Research -- organization & administration
- Data Collection -- standards
- Databases, Factual -- standards
- Decision Making, Organizational
- Delivery of Health Care -- organization & administration
- Evidence-Based Practice -- methods
- France -- epidemiology
- Humans
- Information Storage and Retrieval -- standards
- Internationality
- Practice Guidelines as Topic
- Rare Diseases -- epidemiology
- Registries -- classification
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Publication Type: Journal Article
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