The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy. [electronic resource]
Producer: 19990805Description: 245-50 p. digitalISSN:- 1034-4810
- Adolescent
- Adult
- Advance Directives
- Bereavement
- Child
- Continuity of Patient Care
- Female
- Humans
- Male
- Muscular Atrophy, Spinal -- therapy
- Muscular Dystrophies -- therapy
- Needs Assessment
- Nuclear Family
- Palliative Care -- organization & administration
- Parents -- psychology
- Respiration, Artificial
- Social Support
- South Australia
- Terminal Care -- standards
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Publication Type: Journal Article; Research Support, Non-U.S. Gov't
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