Principles for interactions with biopharmaceutical companies: the development of guidelines for patient advocacy organizations in the field of rare diseases. (Record no. 28003258)
[ view plain ]
| 000 -LEADER | |
|---|---|
| fixed length control field | 01205 a2200349 4500 |
| 005 - DATE AND TIME OF LATEST TRANSACTION | |
| control field | 20250517195158.0 |
| 008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION | |
| fixed length control field | 201903s 0 0 eng d |
| 022 ## - INTERNATIONAL STANDARD SERIAL NUMBER | |
| International Standard Serial Number | 1750-1172 |
| 024 7# - OTHER STANDARD IDENTIFIER | |
| Standard number or code | 10.1186/s13023-018-0761-2 |
| Source of number or code | doi |
| 040 ## - CATALOGING SOURCE | |
| Original cataloging agency | NLM |
| Language of cataloging | eng |
| Transcribing agency | NLM |
| 100 1# - MAIN ENTRY--PERSONAL NAME | |
| Personal name | Stein, Susan |
| 264 #0 - PRODUCTION, PUBLICATION, DISTRIBUTION, MANUFACTURE, AND COPYRIGHT NOTICE | |
| Date of production, publication, distribution, manufacture, or copyright notice | 20190318 |
| 245 00 - TITLE STATEMENT | |
| Title | Principles for interactions with biopharmaceutical companies: the development of guidelines for patient advocacy organizations in the field of rare diseases. |
| Medium | [electronic resource] |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. | |
| Name of publisher, distributor, etc. | Orphanet journal of rare diseases |
| Date of publication, distribution, etc. | 01 2018 |
| 300 ## - PHYSICAL DESCRIPTION | |
| Extent | 18 p. |
| Other physical details | digital |
| 500 ## - GENERAL NOTE | |
| General note | Publication Type: Journal Article |
| 650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name entry element | Decision Making |
| 650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name entry element | Humans |
| 650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name entry element | Patient Advocacy |
| 650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name entry element | Public Health |
| 650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM | |
| Topical term or geographic name entry element | Rare Diseases |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Bogard, Elizabeth |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Boice, Nicole |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Fernandez, Vivian |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Field, Tessa |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Gilstrap, Alan |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Kahn, Susan R |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Larkindale, Jane |
| 700 1# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Mathieson, Toni |
| 773 0# - HOST ITEM ENTRY | |
| Title | Orphanet journal of rare diseases |
| Related parts | vol. 13 |
| -- | no. 1 |
| -- | p. 18 |
| 856 40 - ELECTRONIC LOCATION AND ACCESS | |
| Uniform Resource Identifier | <a href="https://doi.org/10.1186/s13023-018-0761-2">https://doi.org/10.1186/s13023-018-0761-2</a> |
| Public note | Available from publisher's website |
No items available.