Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks. (Record no. 25668082)

MARC details
000 -LEADER
fixed length control field 01742 a2200541 4500
005 - DATE AND TIME OF LATEST TRANSACTION
control field 20250517074911.0
008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION
fixed length control field 201609s 0 0 eng d
022 ## - INTERNATIONAL STANDARD SERIAL NUMBER
International Standard Serial Number 1750-1172
024 7# - OTHER STANDARD IDENTIFIER
Standard number or code 10.1186/s13023-016-0383-5
Source of number or code doi
040 ## - CATALOGING SOURCE
Original cataloging agency NLM
Language of cataloging eng
Transcribing agency NLM
100 1# - MAIN ENTRY--PERSONAL NAME
Personal name Hollak, Carla E M
264 #0 - PRODUCTION, PUBLICATION, DISTRIBUTION, MANUFACTURE, AND COPYRIGHT NOTICE
Date of production, publication, distribution, manufacture, or copyright notice 20160930
245 00 - TITLE STATEMENT
Title Position statement on the role of healthcare professionals, patient organizations and industry in European Reference Networks.
Medium [electronic resource]
260 ## - PUBLICATION, DISTRIBUTION, ETC.
Name of publisher, distributor, etc. Orphanet journal of rare diseases
Date of publication, distribution, etc. Jan 2016
300 ## - PHYSICAL DESCRIPTION
Extent 7 p.
Other physical details digital
500 ## - GENERAL NOTE
General note Publication Type: Journal Article
650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Community Networks
650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Europe
650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Health Personnel
General subdivision standards
650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Humans
650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Patient Advocacy
General subdivision standards
650 04 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Rare Diseases
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Biegstraaten, Marieke
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Baumgartner, Matthias R
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Belmatoug, Nadia
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Bembi, Bruno
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Bosch, Annet
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Brouwers, Martijn
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Dekker, Hanka
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Dobbelaere, Dries
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Engelen, Marc
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Groenendijk, Marike C
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Lachmann, Robin
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Langendonk, Janneke G
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Langeveld, Mirjam
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Linthorst, Gabor
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Morava, Eva
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Poll-The, Bwee Tien
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Rahman, Shamima
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Rubio-Gozalbo, M Estela
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Spiekerkoetter, Ute
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Treacy, Eileen
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Wanders, Ronald
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Zschocke, Johannes
700 1# - ADDED ENTRY--PERSONAL NAME
Personal name Hagendijk, Rob
773 0# - HOST ITEM ENTRY
Title Orphanet journal of rare diseases
Related parts vol. 11
-- p. 7
856 40 - ELECTRONIC LOCATION AND ACCESS
Uniform Resource Identifier <a href="https://doi.org/10.1186/s13023-016-0383-5">https://doi.org/10.1186/s13023-016-0383-5</a>
Public note Available from publisher's website

No items available.