Diagnosis, quality of life, and treatment of patients with Hunter syndrome in the French healthcare system: a retrospective observational study.

Guffon, Nathalie

Diagnosis, quality of life, and treatment of patients with Hunter syndrome in the French healthcare system: a retrospective observational study. [electronic resource] - Orphanet journal of rare diseases Apr 2015 - 43 p. digital

Publication Type: Journal Article; Research Support, Non-U.S. Gov't

1750-1172

10.1186/s13023-015-0259-0 doi


Adolescent
Adult
Child
Child, Preschool
Data Collection
Delivery of Health Care
Enzyme Replacement Therapy
Female
France--epidemiology
Humans
Iduronate Sulfatase--therapeutic use
Infant
Male
Middle Aged
Mucopolysaccharidosis II--drug therapy
Quality of Life
Retrospective Studies
Surveys and Questionnaires
Young Adult