Dying at 23 with 1p36 deletion syndrome: Laura's family story.

Tandy, P A

Dying at 23 with 1p36 deletion syndrome: Laura's family story. [electronic resource] - Internal medicine journal Sep 2012 - 1037-9 p. digital

Publication Type: Journal Article; Personal Narrative

1445-5994

10.1111/j.1445-5994.2012.02878.x doi


Attitude to Death
Chromosome Deletion
Chromosome Disorders--genetics
Chromosomes, Human, Pair 1--genetics
Dissent and Disputes
Emotions
Female
Heart Arrest--etiology
Hospital Units
Hospitalization
Humans
Intensive Care Units
Palliative Care
Privacy
Professional-Family Relations
Syndrome
Terminal Care
Truth Disclosure
Young Adult